Her temp did go down a little, it was 101.0 this morning and it went down to 100.0, that was good. I was also very pleased with Cortney today during quiet time! Not only did she take a nap (which happens maybe once every 4 months), but I gave her a stack of Kleenex, and a small box, told her they were for her to wipe her nose, and the box was to put the dirty ones in. She only used about half the stack, but she put all the dirty ones in the box, and she didn't put any toys or books in the box! My little baby is growing up!
I never like it when she is sick, but this is the first time that she kind of understands, and the first time she can really tell me what hurts and what she needs, that is so nice! She is also very good at taking medicine which I am thrilled with. That is one way she is not like me at all. To this day I am not good at taking medicine, I still make the faces and have to stand there for a minute or two before and build up to taking it. I only learned how to swallow pills shortly after I got married - only because I had to. I was talking to my mom the other day and she was telling me how once I did not want to take some so much so, that she had to sit on me and try to open my mouth and I bit her - so funny because that sounds like such the opposite of me. So I am so happy she just takes medicine like it is no big deal, and never spits it out!
Life has been good but busy! This is the last semester of school for Chris, he is also working part time, and finishing up his manuscript for his thesis. No idea yet where we will be moving come the end of May, hopefully we will find out soon - kind of driving me crazy a little, but I know everything will work out like it is supposed to in the end. Chris has had some interviews but they all want someone sooner.
On a side note, my father in law Garth has been suffering from lyme disease, overall we have seen much improvement, especially since I first joined their family. The other day he sent out an e-mail asking for help - as I don't know exactly what it is all about I will repost it here for you to see -
Dear family and friends,I don't do mass emails, in fact this is first time. However, I could use your help with a very simple request. Would you, your family, friends and anyone you know of any age, please go to www.lymedisease.org and sign the online petition to revise the IDSA (Infectious Diseases Society of America) guidelines for treating Lyme disease. If you want to understand the issue you can read below or on the web site, but in any case, please get as many signatures on the petition as possible. Going deep into your family, friends and other contacts to spread this request would be so appreciated. Thanks!As many of you know, I've sufferred from Lyme (and at least 4 other tick-borne diseases) for many years. It remained undiagonosed for nearly 2 decades. However, I've received treatment for a few years and have had marked improvements in some areas and am beginning to see the light at the end of the tunnel. Lyme (with the other related diseases from tick bites) is very complicated and difficult to detect and treat in many patients, especially when it has been long-term infection. The lyme bacteria can enter cells and hide. It can also form into a cyst making it difficult to detect and kill. It can infect any system of the body, including the central nervous system, and cause many painful and debilitating symptoms, even death. Standard bloodtests are notoriously unreliable. Therefore, it requires a clinical diagnosis from a doctor with experience treating the disease. I have had to travel to Colorado and California for treatment.Unfortunately, the Center for Disease Conctrol (CDC) and LDSA guidelines do not take into account research and results from clinical practices and provide extremely limited and inflexible guidelines which don't work on most patients. As a result of the faulty guidelines, many doctors are uninformed about "best practices". Insurance companies may not pay for the treatments that actually work as they are out of IDSA scope. Also government agencies have been prosecuting doctors (even the most successful doctors in the field) who treat the disease because the most successful practices fall outside the limited IDSA guidelines. Patients and doctors are limited in the ability to review and try the treatments that work best.In recent years the Connecticut attorney general investigated the LDSA guidlines and processes and found the board had grievious problems, including conflicts of interest, suppressing reseach from dissenting doctors, and that they had not allowed representation from dissenting practitioners on the decision making board. The doctors actually treating patients and knowing what works were not allowed in the decision process. CT required the IDSA to revise the guidelines under strict process standards to allow research, points of view, and representation from practitioners. However, the IDSA kept the old guidelines. CT later found that the IDSA did not follow the the required decision processes and simply voted that the limited guidelines remain in place. That is where we are now.This is a situation in which government beauracrats, some with conflicts of interest, prolong the sufferring of so many people and thwart doctors and patients from potentially life-saving treatments. It's driving some of the most experienced and successful doctors into difficult legal situations, inhibiting others from entering the field, and deterring much valuable treatment and research. All we ask is that the guidelines be adjusted to reflect the studies of real practicing doctors and patients, that they allow doctors and patients to use a more broad and flexible treatments for each individual circumstance. Your signatures could help our cause. Thank you so much for doing this for me and other lyme sufferers.Sincerely,Garth Nield
Please follow this link and sign the petition for Garth! www.lymedisease.org Thanks so much for your help!
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